Hear individuals sharing their own experiences of caring for a person with dementia alongside professionals giving a range of practical advice talks.
As well as talks from carers and persons with dementia, you will hear expert presentations on a range of topics including nutrition, personal budgets, paying for care, Mental Capacity Act and research.
View the 2019 programme below
|10.30 – 11.00||Understanding Lewy body dementia - ‘The most common disease you have never heard of’. This session will provide an overview of Lewy body dementia and its impact on families, including recognition, treatment and support.||Rachel Thompson, Consultant Admiral Nurse, Lewy body dementia|
|11.05 – 11.35||The importance of the Mental Capacity Act for people affected by dementia. A walk through of the key provisions of the Mental Capacity Act and how this affects people affected by dementia.|
• The principles of the Mental Capacity Act and why these are important for people living with dementia, and best practice examples
• The test of mental capacity
• The importance of planning ahead for a time when you may lack the ability to make your own decisions
• Planning ahead under the Mental Capacity Act
|Sam Cox, Knowledge Officer (Legal and Welfare Rights), Alzheimer's Society|
|11.40 – 12.10||Delirium. Admiral Nurses Tracey and Rachel will outline information about a common issue, delirium, by answering the following questions:|
• What is delirium?
• Who is affected and what are the symptoms?
• What are the causes?
• How does delirium differ to dementia?
• How can we support someone who has delirium?
|Tracey Lynch and Rachel Watson, Admiral Nurses, Dementia UK|
|12.15 – 12.45||An overview of the rarer dementias|
Chris will give an overview of several different forms of rare dementia, focusing on symptoms, diagnostic challenges, and ways to support and help people affected by these diseases.
• Familial and young onset Alzheimer’s disease • Posterior cortical atrophy • Frontotemporal dementia • Primary progressive aphasia • Support and care for people with a rare dementia
|Dr Chris Hardy, Senior Research Fellow & Education Officer for Rare Dementia Support|
|12.45 – 13.35||LUNCH|
|13.35 – 14.00||Creating a fairer future for people living with Alzheimer's diseaseAs the population ages in the coming decades, the number of people living with dementia will continue to increase. At the current rate of prevalence, by 2040, there will be over 1.5 million people living with dementia in the UK.|
Roche, a global leader in pharmaceuticals and diagnostics, is working with partners in the UK to improve pathways and the experience of care for both people living with dementia and their families. Roche worked with tide™ (together in dementia everyday) to produce a report that outlines the challenges and opportunities that carers and people with dementia and Alzheimer’s face, and advocates for the changes needed to fix the system. In this session, Roche representatives will discuss the need to move towards integrated care and patient-centric care for people with Alzheimer’s.
|Marco Lyons, Global Medical Program Leader, Alzheimer’s Disease and Paula Head, NHS Policy Partnership and Negotiation Partner Chapter Lead, Roche|
|14.05 – 14.25||Living with vascular dementia. Sue was diagnosed with vascular dementia in 2014. After her diagnosis she discovered the benefits of running, completing the London Marathon in 2018 and in 2020, the Vitality Big Half Marathon. Sue also appeared on Channel 4’s The Restaurant that Makes Mistakes.||Sue Strachan, Alzheimer's Research UK Champion|
|14.30 – 15.00||Legal considerations when diagnosed with Dementia. Advice and support your Solicitor can offer to help clients diagnosed with Dementia, including Wills, Powers of Attorney, Trusts, Deputyship, Council Tax, Funerals, and Probate.||Adrian Howlett, Estate Planning Consultant, Jones Whyte Solicitors|
|15.05 – 15.25||Frontotemporal dementia and my family. Denise’s mum Barbara had early-onset frontotemporal dementia, after a four-year struggle to get an accurate diagnosis. Denise will talk about the huge impact that FTD has had on her family.||Denise Wallin, Alzheimer's Research UK Supporter|
|15.30 – 16.00||Eating difficulties and dementia - practical approaches.|
Meeting eating and drinking needs is a common concern for those caring for people living with dementia – this presentation gives some practical suggestions of things that may help.
• Unplanned weight loss may be one of the first signs of dementia but is often missed
• Nutritional problems can be common for those living with dementia and can be very concerning for their carers
• There are many practical approaches which can help
|Alison Smith, Prescribing Support Consultant Dietitian/ Committee Member - British Dietetic Association Older People Specialist Group|
|16.05 – 16.30||End of Life Care. Carers often experience a mixture of ongoing grief and guilt when supporting a person living with dementia and then go through the grieving process again once their loved one dies. As Admiral Nurses based in Hospice settings, we support carers and people living with dementia throughout the dementia journey to end of life. This presentation identifies the different types of grief and looks at what Hospice Services are available to support people living with dementia and their carers.||Jeanette Hogg and Lucy Cosgrove, Admiral Nurse (Hospices), Dementia UK|
|10.40 – 11.10||Practical tips for being a carer. Caring for a person with dementia can be both a rewarding and challenging experience, especially during the coronavirus pandemic. Alzheimer’s Society has put together practical tips to benefit you and the person you are caring for, such as understanding and supporting the person with dementia and looking after yourself.||Dr Tim Beanland, Head of Knowledge Management, Alzheimer's Society, Maria Lanzalaco and U hla Htay, carers|
|11.15 – 11.40||Pain & Communication. Pain is poorly managed and often unidentified in dementia. This session will explore how to assess and identify pain and consider the barriers to effective pain management in dementia.||Julie Green, Deputy Clinical Lead Admiral Nurse Dementia Helpline|
|11.45 – 12.05||Early-onset Alzheimer’s: the diagnosis and disease. Zac’s dad Imran Sherwani was diagnosed with early-onset Alzheimer’s at the age of 55. After a long diagnosis process Zac will talk about the effects of living with Alzheimer’s and how working with ARUK has helped build spirits for his family.||Zac Sherwani, Alzheimer's Research UK Supporter|
|12.10 – 12.40||Paying for Care. People with dementia invariably pay for their own care which can be means tested. This talk outlines how the paying for care system works, what constitutes 'deprivation of assets', continuing NHS healthcare, and the rules which govern this aspect of the dementia journey. Q&A included.||Sara Wilcox, CEO, Pathways Through Dementia|
|12.40 – 13.30||LUNCH|
|13.30 – 14.00||Top 5 Questions on the Admiral Nurses Dementia Helpline. This session will cover some main reasons why families contact the Admiral Nurse Dementia Helpline, and will provide suggestions and build awareness about each topic.||Joanne Freeman and Dean Broadhurst Admiral Nurses, Dementia UK Helpline|
|14.05 – 14.35||Living as a carer and as a family with Dementia. An honest and reflective account of two daughters and their day to day lives when caring for their Mum with Alzheimer’s and Vascular Dementia. Practical tips for a safe and independent household and how we maintained a happy family life.||Gemma and Michelle Tilly|
|14.40 – 15.10||Medicines prescribed for dementia. Supporting individuals and carers with the how, why and when of medicines in dementia care.||Anne Child MBE, Pharmacist and Dementia Specialist Lead at Royal Masonic Benevolent Institution|