Hear individuals sharing their own experiences of caring for a person with dementia alongside professionals giving a range of practical advice talks.

As well as talks from carers and persons with dementia, you will hear expert presentations on a range of topics including nutrition, personal budgets, paying for care, Mental Capacity Act and research.

View the 2019 programme below

10.20 – 10.45Sharing the power of music: using Playlist for Life to reach people with dementiaSarah Metcalfe, Chief Executive, Playlist for Life
10.50 – 11.20Prevention and risk reduction. How should we think about prevention and risk reduction for dementia. Are there key things we can do to help reduce our risks and what can we change in our lifestyles?Paul Edwards, Director of Clinical Services, Dementia UK
11.25 – 11.50Mental Capacity Act - A Surgery. This is an open forum to discuss key aspects of the Mental Capacity Act in dementia care, including applying the principles of the MCA, obtaining consent, DoLS (Deprivation of Liberty Safeguards) and lasting Powers of Attorney.Dr James Warner, Medical Director, Halcyon Doctors
12.00 – 12.30Legal considerations when diagnosed with Dementia. Advice and support your Solicitor can offer to help clients diagnosed with Dementia, including Wills, Powers of Attorney, Trusts, Deputyship, Council Tax, Funerals, and Probate.Adrian Howlett, Estate Planning Consultant, McClure Solicitors
12.35 – 13.00Safety monitoring in Care Homes...It’s Personal..... CCFTV is a leading successful national initiative for the use of safety monitoring in U.K. care homes. Through CCFTV we are working with major care providers/care professionals to implement cctv in communal areas in all care homes for the safety of vulnerable residents living with dementia, care staff and families. Opening up the discussion for the need of safety monitoring to be mandatory in communal areas in all U.K. care settings.Jayne Connery, Director /Founder Care Campaign For The Vulnerable
13.15 – 13.45Lewy Body Dementia. A brief description of the pathology of Lewy Body Dementia and strategies for therapy intervention.Clare Johnson, Specialist Occupational Therapist Parkinsons, University Hospitals of Derby and Burton NHS Foundation trust
13.50 – 14.10From carer to dementia researcher. Helen’s husband, Clive, was diagnosed with frontotemporal dementia aged just 46 and he died in 1999 aged 51. As a result of her experience, Helen decided to make a career change and become a dementia researcher. She completed her PhD in 2015 and her current research involves using MRI scans to improve diagnosis for Alzheimer’s disease. Helen is optimistic about the power of research to find new treatments for people with dementia.Helen Beaumont, Alzheimer's Research UK supporter and dementia researcher
14.15 – 14.45Living Well with Dementia: practical tips. A dementia diagnosis often comes as a shock. How do I start to come to terms with the news? What can I expect to happen? Can I really live well with dementia, and if so how? Providing information, advice and support to thousands of people with dementia, Alzheimer’s Society understands what you’re living through. Hear Tim’s tips from 10 years of working at the Society and his own personal experience.Dr Tim Beanland, Head of Knowledge, Alzheimer’s Society
14.50 – 15.10How I used my dementia diagnosis for good by taking part in research. Brenda was diagnosed with Alzheimer’s disease in 2015 at the age of 71. After the initial shock of her diagnosis, Brenda decided she wanted to get involved in research to help scientists make new breakthroughs in treatments for Alzheimer’s disease. The couple will share Brenda’s journey from her initial symptoms to now and talk about how they continue to raise awareness of dementia by supporting the work of Alzheimer’s Research UK. Brenda and Stephen believe research is the only answer to tackling dementia in the future.Brenda and Stephen Whittle, Champions of Alzheimer’s Research UK
15.20 – 15.50Eating difficulties and dementia - practical approaches. Links between nutrition and dementia are known to pre-date diagnosis, and as the disease progresses, eating difficulties can make eating enough a challenge for both the person with dementia and their carers. This session will focus on practical approaches which can help the person living with dementia to eat enough to meet their needs.Alison Smith, Prescribing Support Consultant Dietitian, Herts Valleys CCG and Chair, British Dietetic Association Older People Specialist Group
16.00 – 16.30How Specialist Palliative Care Services can support people living with a Dementia Diagnosis. How we support people with dementia (and their professional or informal carers, friends and family) to engage in Advanced Care Planning and how we assess the needs of patients with dementia and their families including physical, psychological, behavioural, social and spiritual needs. The importance of liaising with other healthcare professionals involved with advance care planning, symptom management, carer support and end-of-life care.Nuno Santos Lopes, Clinical Nurse Specialist in Palliative Care & Dementia, Royal Trinity Hospice
10.40 – 11.10 The truth about personal budgets.What are personal budgets, am I entitled to one, what can I spend it on, how much will I get? Hear the answers to all these questions and more as we look in detail at the truth about personal budgets and how to make them work for you.Ian McCreath, Personal Choice Programme Manager, Alzheimer's Society
11.15 – 11.40Providing age appropriate support for younger people with dementia. Mark and Rikki will discuss a “live” age appropriate model of support for younger people with dementia in Berkshire and how the promotion of mental and cognitive stimulation is important in any new developments. How does it work today, and what are the plans for developing age appropriate care in the future.Mark Hainy, Director YPWD (Younger People with Dementia) Berkshire West and Rikki Lorenti, Clinical Dementia Nurse Specialist, SweetTree Home Care Services
11.45 – 12.05Tackling the stigma and lack of awareness around dementia. Emily’s mum, Janet, was diagnosed with early-onset Alzheimer’s disease in 2010 aged 60. Emily was at university when her mum first started showing symptoms, so for all her adult life her mum has been living with Alzheimer’s. Frustrated by the lack of public knowledge of Alzheimer’s at the time of her mum’s diagnosis, Emily is determined to raise awareness of the disease and the need for dementia research.Emily Allen, Alzheimer's Research UK supporter
12.10 – 12.40Talking to kids about Dementia - contributing to a dementia-friendly generation.Juliet Rix, journalist & author of children's book Travels with my Granny
13.30 – 14.00‘Top 5 questions on the Admiral Nurses Dementia Helpline’. This session will cover some of the main reasons why people may contact the Admiral Nurse Dementia Helpline, and will aim to provide suggestions and build awareness and about each topic: *How to obtain a diagnosis. *Confusion about the term dementia and the different subtypes (vascular etc.) and the difference between dementia and delirium. *Struggling with a lack of locally coordinated care. *Lack of post diagnostic support. *How to consider managing distress and behaviours that may cause concern or riskHelen Green, Admiral Nurse Helpline, Dementia UK and Alisa Woods, Admiral Nurse Helpline
14.05 – 14.35From early signs and symptoms to end of life experiences: how products can support families throughout the dementia journey.Barbara Stephens, Caregiver-in-Chief, Unforgettable
14.40 – 15.10Medicines prescribed for dementia. Supporting individuals and carers with the how, why and when of medicines in dementia care.Anne Child MBE, Pharmacist and Dementia Specialist Lead at Royal Masonic Benevolent Institution
15.15 – 15.40Social Inclusion, Dementia and the end of loneliness. Steve will speak about the ground breaking memory cafe at St Cuthberts and how it has created a brand new community of love, care and fun. Reverend Steve Morris, Reverend and Memory Cafe Facilitator