Dementia and Care Matters Theatre
Leading professionals will speak on a wide range of topics including research developments, communication, managing behaviour, end of life care and a personal experience of living with dementia. Daily Question Time sessions will allow you to put your questions to the speakers.
Talks Hub 1 & 2
In these open theatres, care and dementia experts will cover a wide range of topics including Mental Capacity, nutrition, carers support, legal issues and specialist organisations will showcase products services such as digital care solutions, respite care, dementia environments, technology, activities, legal and finance.
All of the speaker sessions are fully CPD Accredited and certificates will be accessible via a QR Code.
Speakers for 2022 include:
Peter Berry
Author and living with Alzheimer’s Disease
Dr Simon Adelman
Consultant Psychiatrist, Halcyon Doctors
Dr Emer MacSweeney
CEO Re:Cognition Health
Kate Lee
CEO Alzheimer’s Society
Angelo Makri
Knowledge Officer, Alzheimer’s Society
Jackie Pool
Dementia Care Champion, QCS Quality Compliance Systems
Dementia and Care Matters Theatre
| TIME | TITLE | SPEAKER |
|---|---|---|
| 10.10 - 10.20 | A welcome and introduction to this year's Alzheimer's Show. | Kate Lee, Chief Executive, Alzheimer's Society |
| 10.20 - 10.50 | Building the Dementia Pathway. Gavin will talk about the need to improve the dementia pathway from diagnosis to end of life, and how learning from the impact of the COVID-19 pandemic, national commitment to social care reform and the development of a new National Dementia Strategy has the potential to do just this. | Gavin Terry, Head of Policy, Alzheimer's Society |
| 10.55 - 11.25 | Looking ahead: what is on the horizon for new treatments and diagnosis? Samantha will talk about potential new dementia treatments going through research trials at present and the importance of a timely diagnosis. She will also discuss what the charity is doing to ensure that once new drugs become available, they get to the people who need them without delay. | Samantha Benham-Hermetz, Director of Policy and Public Affairs, Alzheimer’s Research UK |
| 11.30 - 11.55 | How can engagement in meaningful activity contribute to cognitive, physical and mental health? This presentation will explore what is meant by engagement and what is the definition of meaningful in this context. The importance of activity with a deeper significance to the well-being of the person will be discussed and how to support this for people living with dementia at all levels. | Jackie Pool, Dementia Care Champion, QCS Quality Compliance Systems |
| 12.00 - 12.30 | Dementia Care: Best practice and common themes in inspections. | Alison Murray, Head of Inspection - London, Care Quality Commission |
| 12.40 - 13.30 | QUESTION TIME. Put your questions to a panel of experts on topics relating to dementia and care. Samantha Benham-Hermetz, Director of Policy and Public Affairs, Alzheimer’s Research UK Gavin Terry, Head of Policy, Alzheimer's Society Alison Murray, Head of Inspection - London, CQC Jackie Pool, Occupational Therapist and Dementia Care Champion, QCS | Chair: Kate Lee, Chief Executive, Alzheimer's Society |
| 14.00 - 14.30 | Managing behavioural and psychological symptoms of dementia. Behavioural and psychological symptoms of dementia occur in up to 90% of people. They cause distress, institutionalisation and early death. The talk will outline the common symptoms, and discuss assessment and management. | Dr Simon Adelman, Consultant Psychiatrist, Halycon Doctors |
| 14.35 - 14.55 | The Importance of Experiential Training:Training 2 CARE are recognised as leaders in this field for both Dementia and Autism. Understanding the significance of being able to walk in the shoes of the people impacted by any condition, disease syndrome or illness to change perceptions, increase empathy and create a positive person centred approach. | Glenn Knight. Managing Director Training 2 CARE Group |
| 15.00 - 15.30 | Top tips for communicating with people with dementia. An interactive presentation aimed at people affected by dementia as well as health and social care professionals. Communication is an increasing issue for carers, people living with dementia and health and social care staff. But do you know how to engage and communicate effectively with people living with dementia? | Angelo Makri, Knowledge Officer (Wellbeing), Alzheimer's Society and Kate White, Carer |
| 15.35 - 16.00 | Sleep disturbance in dementia Is poor sleep taking its toll on a person with Dementia and their carers? Is poor sleep forcing the potential issue of needing 24-hour care or residential care? | Nicki Bones, CEO, SweetTree Home Care Services |
| 16.05 - 16.35 | Living well with dementia: practical tips. A dementia diagnosis often comes as a shock. How do I start to come to terms with the news? What can I expect to happen? Can I really live well with dementia, and if so how? Providing information, advice and support to thousands of people with dementia, Alzheimer’s Society understands what you’re living through. | Simon Wheeler, Knowledge Officer, Alzheimer's Society, Visna Okaikoi and Mary Tucker, both living with dementia |
| TIME | TITLE | SPEAKER |
|---|---|---|
| 10.40 - 10.50 | A welcome and introduction to this year's Alzheimer's Show | Chris Larkin, Operations Director, Services, Alzheimer's Society |
| 10.50 - 11.20 | Innovations to improve the lives of people affected by dementia - Alzheimer's Society Accelerator Programme. | Simon Lord, Innovation Programme Manager, Alzheimer's Society |
| 11.25 - 11.50 | Living well with dementia - a personal view. Peter is a positive person who speaks from the heart about living with dementia. He was diagnosed with Alzheimer's seven years ago. | Peter Berry from Suffolk was diagnosed with Alzheimer’s in 2015, aged 52 |
| 11.55 - 12.25 | A clinician's view on dementia. Early detection of Alzheimer's disease. | Dennis Chan, Institute of Cognitive Neuroscience, UCL |
| 12.30 - 13.15 | QUESTION TIME. Put your questions to a panel of experts on topics relating to dementia and care. Dennis Chan, Institute of Cognitive Neuroscience, UCL Peter Berry, living with dementia and campaigner Paul Edwards, Director of Clinical Services, Dementia UK Dr Emer MacSweeney, CEO of Re:Cognition Health | Chair: Chris Larkin, Operations Director, Services, Alzheimer's Society |
| 13.40 - 14.05 | Dementia support in the community: a third sector integrated approach. | Barbara Stephens, Chief Executive, Dementia Pathfinders CIC |
| 14.10 - 14.30 | TalkCare. After the pandemic demonstrated the challenges of working as independently for many in the care industry, is it time to come together to and form a social hub to share information, news, legislation, research or just shout about the amazing work that our industry does every day. This presentation shows how care specific social media can massively adjust the landscape of care. | Glenn Knight. Managing Director Training 2 CARE Group |
| 14.35 - 15.05 | How the Global Biomarker and Treatment Revolution is finally solving the Alzheimer’s Disease Pandemic. With the FDA approval of Aduhelm, the first drug in the world, to treat the underlying cause of Alzheimer’s Disease on 7 June 2020, there has been an accelerated focus on international clinical trials to validate and licence new generation treatments designed to slow or ideally halt progression of Alzheimer’s Disease and its symptoms. As with all progressive medical conditions, effective treatment ultimately requires early accurate diagnosis and availability of treatments which when given early will halt or even prevent onset of symptoms. The development of such biomarkers and new treatments is now not only underway, but extremely active. | Dr Emer MacSweeney, CEO of Re:Cognition Health |
| 15.10 - 15.35 | Advance Care Planning. Advance care planning discussions open space in which plans and reflections can be discussed, as well as a place for contemplating future choice and outcomes. When thinking about your future care it is important to discuss your wishes with family, friends and healthcare professionals, so everyone looking after you understands what is more important should you be unable to make your wishes and preferences known. This session considers what questions to think about if considering writing an Advance Care Plan, as well as other options such as Advance Statement of wishes, Advance decisions to refuse treatment and Lasting Power of Attorney, offering you a person-centred choice for the future. | Caroline Scates, Head of Professional and Practice Development and Diane Drain, Admiral Nurse, Dementia UK |
Talks Hub 1
| TIME | TITLE | SPEAKER |
|---|---|---|
| 10.30 – 11.00 | Understanding Lewy body dementia - ‘The most common disease you have never heard of’. This session will provide an overview of Lewy body dementia and its impact on families, including recognition, treatment and support. | Rachel Thompson, Consultant Admiral Nurse, Lewy body dementia |
| 11.05 – 11.35 | The importance of the Mental Capacity Act for people affected by dementia. A walk through of the key provisions of the Mental Capacity Act and how this affects people affected by dementia. • The principles of the Mental Capacity Act and why these are important for people living with dementia, and best practice examples • The test of mental capacity • The importance of planning ahead for a time when you may lack the ability to make your own decisions • Planning ahead under the Mental Capacity Act | Sam Cox, Knowledge Officer (Legal and Welfare Rights), Alzheimer's Society |
| 11.40 – 12.10 | Delirium. Admiral Nurses Tracey and Rachel will outline information about a common issue, delirium, by answering the following questions: • What is delirium? • Who is affected and what are the symptoms? • What are the causes? • How does delirium differ to dementia? • How can we support someone who has delirium? | Tracey Lynch and Rachel Watson, Admiral Nurses, Dementia UK |
| 12.15 – 12.45 | An overview of the rarer dementias Chris will give an overview of several different forms of rare dementia, focusing on symptoms, diagnostic challenges, and ways to support and help people affected by these diseases. • Familial and young onset Alzheimer’s disease • Posterior cortical atrophy • Frontotemporal dementia • Primary progressive aphasia • Support and care for people with a rare dementia | Dr Chris Hardy, Senior Research Fellow & Education Officer for Rare Dementia Support |
| 12.45 – 13.35 | LUNCH | |
| 13.35 – 14.00 | Creating a fairer future for people living with Alzheimer's diseaseAs the population ages in the coming decades, the number of people living with dementia will continue to increase. At the current rate of prevalence, by 2040, there will be over 1.5 million people living with dementia in the UK. Roche, a global leader in pharmaceuticals and diagnostics, is working with partners in the UK to improve pathways and the experience of care for both people living with dementia and their families. Roche worked with tide™ (together in dementia everyday) to produce a report that outlines the challenges and opportunities that carers and people with dementia and Alzheimer’s face, and advocates for the changes needed to fix the system. In this session, Roche representatives will discuss the need to move towards integrated care and patient-centric care for people with Alzheimer’s. | Marco Lyons, Global Medical Program Leader, Alzheimer’s Disease and Paula Head, NHS Policy Partnership and Negotiation Partner Chapter Lead, Roche |
| 14.05 – 14.25 | Living with vascular dementia. Sue was diagnosed with vascular dementia in 2014. After her diagnosis she discovered the benefits of running, completing the London Marathon in 2018 and in 2020, the Vitality Big Half Marathon. Sue also appeared on Channel 4’s The Restaurant that Makes Mistakes. | Sue Strachan, Alzheimer's Research UK Champion |
| 14.30 – 15.00 | Legal considerations when diagnosed with Dementia. Advice and support your Solicitor can offer to help clients diagnosed with Dementia, including Wills, Powers of Attorney, Trusts, Deputyship, Council Tax, Funerals, and Probate. | Adrian Howlett, Estate Planning Consultant, Jones Whyte Solicitors |
| 15.05 – 15.25 | Frontotemporal dementia and my family. Denise’s mum Barbara had early-onset frontotemporal dementia, after a four-year struggle to get an accurate diagnosis. Denise will talk about the huge impact that FTD has had on her family. | Denise Wallin, Alzheimer's Research UK Supporter |
| 15.30 – 16.00 | Eating difficulties and dementia - practical approaches. Meeting eating and drinking needs is a common concern for those caring for people living with dementia – this presentation gives some practical suggestions of things that may help. • Unplanned weight loss may be one of the first signs of dementia but is often missed • Nutritional problems can be common for those living with dementia and can be very concerning for their carers • There are many practical approaches which can help | Alison Smith, Prescribing Support Consultant Dietitian/ Committee Member - British Dietetic Association Older People Specialist Group |
| 16.05 – 16.30 | End of Life Care. Carers often experience a mixture of ongoing grief and guilt when supporting a person living with dementia and then go through the grieving process again once their loved one dies. As Admiral Nurses based in Hospice settings, we support carers and people living with dementia throughout the dementia journey to end of life. This presentation identifies the different types of grief and looks at what Hospice Services are available to support people living with dementia and their carers. | Jeanette Hogg and Lucy Cosgrove, Admiral Nurse (Hospices), Dementia UK |
| TIME | TITLE | SPEAKER |
|---|---|---|
| 10.40 – 11.10 | Practical tips for being a carer. Caring for a person with dementia can be both a rewarding and challenging experience, especially during the coronavirus pandemic. Alzheimer’s Society has put together practical tips to benefit you and the person you are caring for, such as understanding and supporting the person with dementia and looking after yourself. | Dr Tim Beanland, Head of Knowledge Management, Alzheimer's Society, Maria Lanzalaco and U hla Htay, carers |
| 11.15 – 11.40 | Pain & Communication. Pain is poorly managed and often unidentified in dementia. This session will explore how to assess and identify pain and consider the barriers to effective pain management in dementia. | Julie Green, Deputy Clinical Lead Admiral Nurse Dementia Helpline |
| 11.45 – 12.05 | Early-onset Alzheimer’s: the diagnosis and disease. Zac’s dad Imran Sherwani was diagnosed with early-onset Alzheimer’s at the age of 55. After a long diagnosis process Zac will talk about the effects of living with Alzheimer’s and how working with ARUK has helped build spirits for his family. | Zac Sherwani, Alzheimer's Research UK Supporter |
| 12.10 – 12.40 | Paying for Care. People with dementia invariably pay for their own care which can be means tested. This talk outlines how the paying for care system works, what constitutes 'deprivation of assets', continuing NHS healthcare, and the rules which govern this aspect of the dementia journey. Q&A included. | Sara Wilcox, CEO, Pathways Through Dementia |
| 12.40 – 13.30 | LUNCH | |
| 13.30 – 14.00 | Top 5 Questions on the Admiral Nurses Dementia Helpline. This session will cover some main reasons why families contact the Admiral Nurse Dementia Helpline, and will provide suggestions and build awareness about each topic. | Joanne Freeman and Dean Broadhurst Admiral Nurses, Dementia UK Helpline |
| 14.05 – 14.35 | Living as a carer and as a family with Dementia. An honest and reflective account of two daughters and their day to day lives when caring for their Mum with Alzheimer’s and Vascular Dementia. Practical tips for a safe and independent household and how we maintained a happy family life. | Gemma and Michelle Tilly |
| 14.40 – 15.10 | Medicines prescribed for dementia. Supporting individuals and carers with the how, why and when of medicines in dementia care. | Anne Child MBE, Pharmacist and Dementia Specialist Lead at Royal Masonic Benevolent Institution |
Talks Hub 2
| TIME | TITLE | EXHIBITOR / SPEAKER |
|---|---|---|
| 10.40 – 11.00 | Best practices for dining with dementia. Overview of the challenges around mealtimes for those living with dementia and how to best tackle them to improve mealtime experience and make a real difference to them and loved ones. | Wiltshire Farm Foods. Paolo Lamparelli, Specialist Nutrition Executive |
| 11.05 - 11.25 | The Impact of the Mobii Magic Surface in Dementia Care. Presentation of an independent research study assessing the efficacy of OMi’s magic surface/interactive table technology in dementia care. | OM Interactive. Trevor Nell, Director of Operations |
| 11.30 – 11.50 | Otiom – The World’s First IoT Based Device, Designed To Prevent People With Dementia From Becoming Lost. Introducing Otiom – a revolutionary localisation device designed to provide peace of mind for people living with dementia and their carers. Otiom utilises rapidly growing Internet of Things (IoT) technology ensuring safe, reliable tracking indoors and out, whilst increasing battery life way beyond other monitoring devices. Pentland Medical will give an overview on the background of Otiom and show how its recent launch in the UK has already improved the lives of many. | Pentland Medical Ltd. Jamie Munro, Product Manager |
| 11.55 – 12.15 | Support at your fingertips: an overview of DCC’s free support services for family carers. This brief talk will cover DCCs digital and face-to-face offers and include reflections from two carers. | Dementia Carers Count. Deborah Bevan, Sarah Churchill, Sue Hinds and Steve Dubbins |
| 12.20 – 12.50 | Healthy Ageing for Carers. The development of a healthy ageing platform and its origin from providing dementia therapy to the current platform Goldster, an accessible way for carers to engage in classes to promote physical and mental wellbeing in their own environment. | Goldster Ltd. Dr Zara Quail MBChB, Clinical Scientific Research Lead, Care Visions Healthy Ageing & Goldster |
| 12.50 – 13.35 | LUNCH | |
| 13.35 – 13.55 | How the Global Biomarker and Treatment Revolution is finally solving the Alzheimer’s Disease Pandemic. With the FDA approval of Aduhelm, the first drug in the world to treat the underlying cause of Alzheimer’s Disease, there has been an accelerated focus on international clinical trials to validate and licence new treatments designed to slow or ideally halt progression of Alzheimer’s and its symptoms. | Re:Cognition Health. Dr Emer MacSweeney, CEO |
| 14.00 - 14.20 | Thinking Differently About Dementia: The essential benefits of nature. Helping people to get outdoors, connect with nature and their community, and retain a sense of adventure in their lives. | Dementia Adventure. Gordon Malcolm, Project Coordinator |
| 14.25 - 14.45 | If I get dementia, will they serve me meat?Find out how to develop your practice – and be mindful of the law – when catering for specific dietary beliefs. • Research has shown that 22% of UK care homes have one or more vegetarian or vegan (veg*n) residents – and this figure seems to be rising. • Revisiting the Mental Capacity Act in light of caring for someone living with dementia, who has a food allergy, or specific dietary belief. • Viewing your care setting through the eyes of a veg*n living with dementia – why might someone you care for now be asking for meat? • The Vegetarian for Life Memory Care Pledge: five fundamental good practices to help ensure that veg*ns who have capacity issues, or cognitive losses, will be offered a choice of meals, drinks and snacks that uphold their ethical beliefs. | Vegetarian for Life. Amanda Woodvine |
| 14.50 - 15.10 | Hearing Loss and Dementia. Learn about the latest research into the links between hearing loss and dementia, and how you may manage your hearing loss. | RNID. Crystal Rolfe, Associate Director for Strategy- Health |
| 15.15 - 15.35 | The ExperienceTable. An interactive presentation on how touch serious games can help careworkers improve the wellbeing of people with dementia. | Sovacare. Edith Zuiderent, CEO |
| 15.40 - 16.00 | Implementing an innovative Dementia Support Programme in domiciliary care. | Right at Home. Simon Osborne, Head of Quality and Compliance and Clinical, IPC & Dementia Lead Practitioner |
| TIME | TITLE | EXHIBITOR / SPEAKER |
|---|---|---|
| 10.50 – 11.10 | My Life TV. Dementia Friendly TV Channel. Benefits people living with dementia and their carers. | MyLifeFilms. Jorg Roth, Founder |
| 11.15 – 11.35 | Getting your affairs in order. A breakdown of the core services that Jones Whyte Solicitors provides, including Wills, Will Reviews, Lasting Powers of Attorney, Family Protection Trusts and Inheritance Tax Planning. | Jones Whyte Solicitors. Adrian Howlett, Estate Planning Consultant |
| 11.40 – 12.00 | How to Stay at Home With The Right Dementia Care. Independence. It’s something that many of us take for granted. Explore how focussing on enablement can allow someone with dementia to continue living in the home they know and love, with comfort, safety and independence. | Helping Hands. Carole Kerton-Church, Regional Clinical Lead London |
| 12.05 – 12.25 | The Future of Clinical Trials for Memory Impairment. Find out about the current state of play for Alzheimer’s disease and memory impairment clinical research; and discover what it’s like to take part in a research trial. | St Pancras Clinical Research. Dr Stuart Ratcliffe, Chief Scientific Officer; Dr Alishah Suleman, Clinical Research Physician and Kieran Fallon, Patient Engagement Team |
| 12.25 – 13.20 | LUNCH | |
| 13.20 – 13.40 | ‘The Hope Model’. When I was training as a psychologist I was fascinated by the concept of the ‘Paradigm Shift’ and how it refers to a revolutionary change in thinking or assumptions about a particular phenomenom. This talk is about the changes that occurred in my own understanding of Alzheimer’s Disease and in my family since we introduced a hope based model of thinking. | Psychology Egg. Dr Anna Moore Asgharian, Clinical Psychologist & Founder |
| 13.45 - 14.05 | Tales of the expected and unexpected - the importance of planning for care | The Good Care Group. Elaine Murray, Community Ambassador |
| 14.10 – 14.30 | Their voice, their story, their soundtrack, their legacy. The power of the human voice, the importance of the story it tells, the connection to the soundtrack that accompanies it and the longevity of the legacy it creates. | Back Story. Damian Bailey, Founder |
| 14.35 – 14.55 | How Join Dementia Research enables people to find suitable dementia studies and accelerate vital research. | NIHR - National Institute for Health Research. Christine Menzies, acting Join Dementia Research Manager and Dr Eleanor van den Heuvel, Brunel University |
| 15.00 – 15.20 | My Name is Not Dementia. Dementia: Film & Documenting - The Importance and Power of sharing a life with dementia through documentary films. Brothers Andrew and Lee cared for their Mother Val for 13 years who had all variants of Frontotemporal Dementia and Motor Neurone Disease from the age of 55. They made 3 films that have had a wide impact across the globe with informing research and raising awareness of still, a less known dementia. In 2009, This May Just Drive Us Crazy, 2013 My Name is Rod with the final film, My Name is Val premiering in 2022. The brothers discuss the positives of this filmaking process. | Lee Pearse, Senior Manager and Andrew Pearse, Communications and Publicity Manager, Heeley City Farm |
