25/26 May webinars

WEBINAR SERIES No.3

New Directions in Understanding Dementia.
Expert Advice, Support and Insights for a more Holistic Approach.

May logoTuesday 25th & Wednesday 26th May 2021
in partnership with Alzheimer’s Society

An online event – join live or catch up later

Brought to you by the organisers of the Alzheimer’s Show, this two-day programme of online talks and discussions will bring together leading experts in the field, including voices of the lived experience, specialist trainers, and key speakers from our partners Alzheimer’s Society and Dementia UK.

Challenging some of the myths surrounding dementia, this event will provide a real insight into the latest approaches and techniques, recognising the importance of always acknowledging the ‘whole’ person rather than focusing on the brain in isolation.

With experts in sensory changes, sexual wellbeing, LGBT+ inclusion, the ‘butterfly approach’ to care, and creative expression, this promises to be a lively two days packed full of ideas, advice and practical support. We are delighted to be hosting an open panel discussion; ‘Things I wish I’d known on diagnosis’ with special guest, Wendy Mitchell and her fellow DEEP colleagues, who will be sharing some of the many ways they have learned to adapt to life with dementia, one not to be missed.

This is an online event. A Zoom link will be emailed to all registered participants upon registration the week before and the day before the event.

Join us live or catch up later! The recordings will be available for 30 days following the event.

Topics include:

  • The work of the 3 Nations Dementia Working Group
  • Dementia and the senses
  • Top five questions on the Dementia UK Admiral Nurses Helpline
  • Sexually Speaking: Dementia, Sex and Wellbeing
  • Paying for care at home and residential care
  • So You Want to Be LGBT+ Inclusive?
  • Music and dementia – the impact of Singing for the Brain
  • Exploring new ways of creative expression following a dementia diagnosis
  • Understanding Lewy body dementia – challenges and solutions
  • Panel discussion: What I wish I’d known on diagnosis
  • Plan for tomorrow, live for today
  • How do we create a meaningful day for those we care for?
  • Harnessing the power of start-ups to change the lives of people affected by dementia
  • How the Butterfly Approach creates small household living for people living with dementia

You will also be able to connect and share experiences with other attendees and have the opportunity to put questions to the expert speakers.

DOWNLOAD AND PRINT THE PROGRAMME

Book the 2 days now for just £17.99* for public/carer/family member and £32.99* for professionals.

Get in touch if you want to book a group of tickets on invoice: nward@alzheimersshow.co.uk

Professionals will receive confirmation of attendance and certificate (upon request) to put towards their personal CPD. Price includes 30 days access to recordings of all the webinars and speaker presentation slides. *Booking fee appliesCPDCertifiedlogo_SM

What’s included in the ticket price:

  • 2 days of live webinars – 16 sessions. Experts speakers will present 40 minute webinars including 10 minutes for questions.
  • Access to recordings for 30 days. If you miss or wish to re-watch, any of the live webinars, you can view recordings of them for 30 days after the series has ended.
  • Speaker presentation slides. Available to view.
  • Confirmation of professional attendance by email and certificate (upon request)

Speakers include:

Mrs Agnes Houston MBE, Knowledge Exchange Associate, HammondCare
Danuta Lipinska, Independent training consultant and group facilitator
Mike Phillips, Trainer, Facilitator, Consultant and Coach, Mike Phillips Training
Zoe Harris, Founder / CEO, Mycarematters
Clarissa Manuel-Jones, Knowledge Officer (Welfare and Social Care), Alzheimer’s Society
Philly Hare, co-Director, Innovations in Dementia
Rachel Thompson, Consultant Admiral Nurse, Lewy body dementia, Dementia UK
Ann Likeman, Training and Support Volunteer, Alzheimer’s Society
Jackie Cooper, Occupational Therapist, The Good Care Group
Wendy Mitchell, Author, Speaker & Member of the DEEP Network
Sally Knocker, Consultant Trainer, Meaningful Care Matters
Natasha Morgan, Senior Innovator, Alzheimer’s Society

See below detailed information on the 25 & 26 May online event:

Webinar programme

TIMETITLESPEAKER
9.30Welcome and introduction.Nigel Ward, Event Director, The Alzheimer's Show
9.30 - 10.10Living with dementia through lockdown
Masood will be talking about the volunteer work he has done making “Companion Calls” and writing letters to isolated people with dementia and the benefits this had for himself as well as those he was in contact with.
Nigel will be talking about the 3NDWG (3 Nations Dementia Working Group) adapting their work to be online, including the fortnightly webinars and weekend social Zoom sessions and how these have helped to keep people connected and engaged.
Nigel Hullah, Chair, 3 Nations Dementia Working Group and Masood Qureshi, Volunteer for Alzheimer’s Society and Steering group member of 3NDWG
10.15 - 11.00Dementia and the Senses
Dementia is more than memory – Agnes Houston talks about how ageing and dementia can affect vision, hearing, touch, taste, smell and balance.
• Agnes talks about her own experience of dementia
• How Agnes sought help and support
• Her book – Talking Sense
• What next? – bringing the professionals on board
Mrs Agnes Houston MBE, Knowledge Exchange Associate, HammondCare
11.00 - 11.15BREAK
11.15 - 11.55Top five questions on the Dementia UK Admiral Nurses Helpline
The session will cover:
• Accessing support for families
• COVID-19
• Psychological and emotional support
• Getting a diagnosis
• Dementia understanding and support
Julie Green and Caroline Woodcock, Admiral Nurses, Dementia UK
12.00 - 12.50Panel discussion - The importance of social care
Panellists: Margaret Godfrey - Carer for someone with dementia
Dame Philippa Russell - Vice president of Carers UK and Board member of TLAP (Think Local, Act Personal)
Avnish Goyal – Chair, Hallmark Care Homes
Panel chair: Zoe Campbell - Operations Director, Alzheimer’s Society
12.50 - 13.20LUNCH BREAK
13.20 - 14.00Sexually Speaking: Dementia, Sex and Wellbeing
A person-centred guide for people with dementia, their partners, caregivers and professionals.
• A brief review of ‘why’ this topic? And the benefits of wellbeing
• Challenging the stereotypes of the Last Taboo
• Review of adult sexuality in later life and the impact of dementia on the brain and sex
• Exploring a model for person-centred conversations around sexuality
Danuta Lipinska, Independent training consultant and group facilitator. Counsellor and Supervisor in private practice
14.05 - 14.45Discovering new dementia treatments to transform lives
An overview of drug discovery for the treatment of dementia.
• Alzheimer’s disease pathology.
• Goals of the Oxford Drug Discovery Institute.
• Processes to identify new drug targets.
• Challenges associated with drug discovery.
• Hopes for the future.
Dr Emma Mead, Neuroimmune Team Leader, Alzheimer’s Research UK Oxford Drug Discovery Institute
14.45 - 15.00BREAK
15.00 - 15.40Paying for care at home and residential care
In this session we will be looking at paying for social care both at home and in a residential care setting and when the local authority or NHS are likely to contribute.
• Paying for care at home
• Paying for permanent residential care
• What’s included in the financial assessment
• NHS Continuing Health Care
Clarissa Manuel-Jones, Knowledge Officer (Welfare and Social Care), Alzheimer’s Society
15.45 - 16.25So You Want to Be LGBT+ Inclusive?
Meeting the needs of LGBT+ people with dementia.
Becoming inclusive – how can we do it?
By the end of this session, you will be able to:
• Recognise how the experiences of older LGBT+ people may create barriers to accessing care and how they can feel ‘forced back into the closet.’
• Be aware of the specific challenges of LGBT+ people living with dementia
• Identify the why, who, where, when, what and how of being more LGBT inclusive.
Mike Phillips, Trainer, Facilitator, Consultant and Coach, Mike Phillips Training
16.25Closing commentsNigel Ward, Event Director, The Alzheimer's Show
TIMETITLESPEAKER
9.30Welcome and introduction.Nigel Ward, Event Director, The Alzheimer's Show
9.30 - 10.10Music and dementia – the impact of Singing for the Brain
An opportunity to explore the impact and power of music through Singing for the Brain for people affected by dementia.
• Explore what Singing for the Brain is
• How Singing for the Brain could benefit people affected by dementia
• The music choice – it’s about you and what you enjoy
• What people affected by dementia have said
• Further information regarding Singing for the Brain
Ann Likeman, Training and Support Volunteer, Alzheimer’s Society
10.15 - 11.00Exploring new ways of creative expression following a dementia diagnosis
Reflections on the Dementia Craftivism project
• Learning new skills
• Camaraderie and peer support
• Teaching each other
• The care homes project with NAPA
• Sending a message to the world
Philly Hare, co-Director, Innovations in Dementia and Gail Gregory, person living with dementia

11.00 - 11.15BREAK
11.15 - 11.55Understanding Lewy body dementia – challenges and solutions
This session will provide an overview of Lewy body dementia; including recognising common symptoms, getting a diagnosis and understanding treatments. Some of the challenges experienced by families affected by Lewy body dementia will be discussed along with possible solutions and accessing support.
Rachel Thompson, Consultant Admiral Nurse, Lewy body dementia, Dementia UK
12.00 - 12.50Panel discussion: What I wish I’d known on diagnosis.
A fascinating opportunity to hear from the real experts.
Philly Hare will be in conversation with Wendy Mitchell, George Rook and Chris Maddocks as they share advice and practical tips on adapting to life with dementia: valuable insights that have led to the launch of a Dementia Tip-share website. There will also be the opportunity to ask the panel your questions, not to be missed!
Moderator: Philly Hare
Panel: Wendy Mitchell, George Rook and Chris Maddocks; Members of DEEP
12.50 - 13.20LUNCH BREAK
13.20 - 14.00Plan for tomorrow, live for today. Regaining a sense of control over our future.
Zoe Harris will share what she learned, and discuss the award-winning solutions she developed, as a result of her late husband’s experience of living with dementia.
• The conversations we should be having, the plans we should be making, after (and before!) a dementia diagnosis
• How to enable people to know what matters to a person when they can no longer communicate
• Practical tips for achieving a sense of control over the future
Zoe Harris, Founder / CEO, Mycarematters
14.05 - 14.45How do we create a meaningful day for those we care for?
Human beings are designed for occupation, they need purpose and activity to give their lives meaning and fulfillment, a diagnosis of dementia doesn’t change this.
• What is occupation/activity?
• Why is it important?
• What is meant by a ‘meaningful day’
• How do we tailor activites to meet an individuals needs/wishes/abilities?
Jackie Cooper, Occupational Therapist, The Good Care Group
14.45 - 15.00BREAK
15.00 - 15.40The Alzheimer’s Society Accelerator Programme: Harnessing the power of start-ups to change the lives of people affected by dementia
An introduction to Alzheimer’s Society’s approach to innovation including its Accelerator Programme to bring start-ups to life.
A showcase of Accelerator partners, past and present:
• Konnect by Kraydel: Video calling through your TV to reduce loneliness and isolation
• HUG by Laugh: A playful, interactive comforter designed to be cuddled by people living with advanced dementia.
• Sibstar: A highly secure, prepaid debit card and app to help safely manage everyday spending
• Jelly Drops: Jelly Drops are an innovative sugar-free treat, made of 95% water, designed to increase fluid intake.
• ‘Refresh’ by How Do I?: A pair of mobile apps that can link helpful personalised videos to objects in your home


Natasha Morgan, Senior Innovator, Alzheimer’s Society
15.45 - 16.25"We are all friends and family here!” – how the Butterfly Approach creates small household living for people living with dementia
This presentation will describe the core ingredients of a Butterfly Home, what creates its unique family atmosphere, and how preserving emotional care as a priority has never been more important.
• What makes a Butterfly Home different?
• The importance of breaking down ‘them and us’ in care homes, for example uniforms, medicine and tea trolleys and nursing stations
• How we can ensure that in the context of Covid 19, we don’t allow controlling and clinical care features to dominate and reduce the sense of being ‘at home’?
• What are the ways in which we can keep fun, love, meaningful activity and friendship at the heart of care?
Sally Knocker, Consultant Trainer, Meaningful Care Matters
16.25Closing commentsNigel Ward, Event Director, The Alzheimer's Show

Presenters biographies

Nigel HNigel Hullah, Chair, 3 Nations Dementia Working Group
Nigel was diagnosed with early onset dementia in 2013. He has become fully engaged with social justice and human rights of people living with Dementia as the slow drip of being considered a lesser person because of his disability was made obvious to him?
Before his diagnosis Nigel had worked in the Public Private and Third sector roles. He is currently Chair the 3 Nations Dementia Working group and also sits on several advisory groups at a strategic level with Welsh Government.
Masood qureshi-020-1Masood Ahmed Qureshi (MAQ), Volunteer for Alzheimer’s Society and Steering group member of 3NDWG
Masood Ahmed Qureshi known to friends as MAQ. Living with the diagnosis of FTD since 2010. Member of DEEP & 3NDWG. Founder member of PSG at BJF in Stoke on Trent. Volunteer for Alzheimer’s Society.
Agnes Houston150x176Mrs Agnes Houston MBE, Knowledge Exchange Associate, HammondCare
Agnes comes from a nursing background and worked as a manager in a chiropractic practice. Agnes also cared for her dad who had vascular and Alzheimer’s dementia, and she herself was diagnosed with Early Onset Alzheimer’s Dementia in 2006 at the age of 57. Soon afterwards, she joined the Scottish Dementia Working Group and has campaigned on many issues including better training on dementia care in acute hospitals and raising awareness of visual difficulties commonly experienced by those with dementia. She has campaigned for best practice and improving lives of people with dementia and was received a lifetime achievement award from Alzheimer Scotland in 2013. In 2015, Agnes was awarded an MBE and in 2016 was awarded a Churchill Fellow. As part of her Churchill Fellowship, Agnes travelled to Ireland and Canada to explore dementia and sensory issues. She has since published her book Talking Sense: Living with Sensory Changes and Dementia and is now looking at how to share this knowledge with professionals in the auditory and vision fields.
Caroline Woodcock 15x176Caroline Woodcock, Admiral Nurse, Dementia UK
My name is Caroline Woodcock and I am a Registered Mental Health Nurse. I have a BSc (Hons) in Dementia Care and am a qualified teacher/assessor of dementia care in care homes. I started my nursing career working on an acute assessment ward for older people experiencing functional mental illness. I then worked as a Community Mental Health Nurse. I have been an Admiral Nurse for the past 7 years, initially in the care home sector but now work full-time on the Dementia UK Admiral Nurse Helpline.
Emma-Mead-headshotDr Emma Mead, Neuroimmune Team Leader, Alzheimer’s Research UK Oxford Drug Discovery Institute

Emma received her PhD in Neuroscience from University College London, and has worked in academia and industry. Emma has several years experience investigating the role of inflammation in neurodegeneration, focussing on target validation and early drug discovery for neurodegenerative diseases. She now leads the neuroinflammation team at the ODDI, who utilise human iPSC macrophage cultures for target validation, and develop cell based screening assays for progression of neuroinflammatory projects.
Julie Green 150x176Julie Green, Admiral Nurse, Dementia UK
I am a Registered General Nurse with over twelve years experience as a Dementia Specialist / Admiral Nurse. I initially worked within the acute hospital setting transforming the experience of patients with dementia and their families, proudly assisting the hospital to achieve the highest score (carers experience) in the country in the National Audit for Dementia 2016. I then set up the Admiral Nurse Service within the Hospice setting enabling this group of patients to receive holistic end of life care previously unacessible. I have recently joined the Admiral Nurse Helpline which has enhanced my skills further
Danuta 150x176Danuta Lipinska, Independent training consultant, author and group facilitator. Counsellor and Supervisor in private practice.
Danuta has a passionate interest in dementia, ageing and mental health and in supporting family and professional carers. She continues to be highly involved in this area of expertise. She is an experienced counsellor, supervisor, training consultant and international speaker. Danuta is also the ground-breaking author of ‘Dementia, Sex and Wellbeing ‘ and ‘Person-Centred Counselling for People with Dementia’ as well as many journal articles.
Clarissa Manuel-Jones150x176Clarissa Manuel-Jones, Knowledge Officer (Welfare and Social Care), Alzheimer’s Society
Clarissa has worked at several charities including at the National Autistic Society for 6 years as a specialist adviser in social care and Leonard Cheshire as an adviser in social care and welfare rights.
She holds a Masters degree in Social Work and previously worked with adults including people with dementia, in a London local authority.
As a Knowledge Officer at the Alzheimer’s Society she specialises in social care and benefits advice and information relevant to people affected by dementia.
Sarah Russell150x176Mike Phillips, Trainer, Facilitator, Consultant and Coach, Mike Phillips Training

Mike is a freelance trainer, facilitator, consultant and coach who is passionate about releasing potential through learning and development. He has delivered training across London, the UK and internationally using a range of interactive training techniques which build upon adult learning, brain-friendly and accelerated learning principles. He is an associate trainer and consultant with several organisations.

Involved in LGBT+ and HIV activism for 30+ years, Mike is Advisor on LGBT+ inclusion for NAPA.
Ann Likeman_150x176Ann Likeman, Training and Support Volunteer, Alzheimer’s Society
Ann has previously been a Singing for the Brain leader in West Yorkshire for 5 years. Using her love of music she was able to combine her skills and experience with a desire to give back to the local community, developing four community Singing for the Brain groups. Since relocating in 2019 Ann has played an integral role in training people to deliver their own Singing for the Brain group.
Chris Hardy 150x176Philly Hare, co-Director, Innovations in Dementia
Philly Hare is a co-Director at Innovations in Dementia. Her particular interests are the empowerment and inclusion of people with dementia, and the application of research evidence to practice. As a qualified social worker, Philly has experience within the NHS, Local Authorities and the voluntary sector in many areas of adult social care. Philly has a first degree in English and Philosophy (Exeter University) and an MSc in Applied Social Studies (Oxford University).
Gklenn Knight 150x176Gail Gregory, member of DEEP
My Name is Gail and I’m 56 years old
I was diagnosed with Early Onset Alzheimer’s at the age of 54 on February the 14th 2019
I don’t look at my diagnosis negatively
This is a new chapter in my life
My dementia chapter
Over the last two years I have entered a whole new world.
New ways to keep me occupied and keep my brain active.
I love walking with my dogs, taking photos of nature and crafting
I love to craft and share my work and encourage others to have a go.
Crafting keeps me positive, gives me a purpose a sense of achievement, it brings people together.
Rachel Thompson - PhotoRachel Thompson, Consultant Admiral Nurse, Lewy body dementia, Dementia UK
Rachel is currently the Consultant Admiral Nurse for Lewy Body dementia; funded by the Lewy Body Society. This is a national role offering education, consultancy and direct clinical support to families. She has worked as a nurse for over 30 years across a range of settings and first specialised in dementia care as an Admiral Nurse in 1999.
Wendy Mitchell 150x176Wendy Mitchell, Author, Speaker & Member of the DEEP Network
I was diagnosed in 2014 with mixed dementia. I soon learnt that adapting was the key to survival in order to outmanoeuvre the everyday challenges that dementia throws at you. I am the author of Sunday Times Bestseller ‘Somebody I used to Know’ and also proud and humbled to be Dr from both Hull and Bradford Universities.’
George RookGeorge Rook, Co-Chair LEAP, Dementia UK & Member of the DEEP Network
A former English teacher & School Business Manager, George was diagnosed with Alzheimer’s & vascular dementia in 2014 aged 62 years. Since then he has worked with Dementia UK as Co-Chair of LEAP (the Lived Experience Advisory Panel), Innovations in Dementia (incl. the DEEP network), and his own local commissioners and trusts to improve the support and care for people living with dementia. Before Covid he developed six DEEP groups in Shropshire and now facilitates a weekly zoom.
Chris MaddocksChris Maddocks, Alzheimer’s Society Ambassador & Dementia Activist
A keen sportswoman, representing South Wales schools in the javelin, Chris originally expected to become a PE teacher. Instead, she joined the Police and spent 30 years there, mostly in CID. She also had a five-year secondment to Interpol, London during the 1990s. Chris, latterly worked in law enforcement for the Environment Agency before retiring due to ill health in 2016. Chris has a diagnosis of Vascular Dementia, Parkinson’s disease and Lewy Body Dementia. She is an Ambassador for the Alzheimer’s Society, The Lewy Body Society and NAPA. An active member of The DEEP Network she is a dementia activist raising awareness of dementia.
Zoe Harris 150x176Zoe Harris, Founder / CEO, Mycarematters
Zoe Harris created the original Remember-I’m-Me Care Chart to help with her husband’s care; the charts have since been adopted by over 1,400 UK care homes and hospitals. Zoe went on to develop a free online platform, Mycarematters, and then the My Future Care Handbook, supporting people in their future care planning. Zoe has won numerous awards and was named a Nesta New Radical and HSJ Top Innovator in 2014.
Jackie Cooper 150x176Jackie Cooper, Occupational Therapist, The Good Care Group
Jackie has been working with The Good Care group for 4 years. Prior to this she worked as an Occupational Therapist in the NHS for 25 years. Her main experience is working in older people’s mental health community teams.
In her current role Jackie works to support the care teams and clients with moving and handling strategies, risk management advice, falls prevention and activity planning.
Natasha Morgan_150x176Natasha Morgan, Senior Innovator, Alzheimer’s Society
Natasha has been with Alzheimer’s Society for five years, drawing on her background in social research and evaluation to rapidly co-design solutions to challenges faced by people affected by dementia. Projects include managing finances, improving hospital discharge, and reducing social isolation. She is currently supporting Sibstar, one of the Society’s Accelerator Partners, to develop and launch their product – a pre-paid debit card and app.
Sally Knocker 150x176Sally Knocker, Consultant Trainer, Meaningful Care Matters
Sally Knocker has worked in older people’s care for over thirty years, with a particular passion for dementia care. She now works with Meaningful Care Matters, an international organisation working collaboratively to inspire positive care cultures where people can truly feel free to be themselves. She is the author of ‘Loving, the Essence of Being a Butterfly in Dementia Care’ and ‘Safe to be Me – Meeting the needs of older LGBT people’.

Ticket prices | Timings |  How to view | Recordings

Ticket typePrice
Part One or Part Two: Public/Carer/Family member£19.99*
Part One or Part Two: Professional£32.99*
Part One and Part Two: Public/Carer/Family member£35.99*
Part One and Part Two: Professional£59.99*
• This is the price for access to the live two day or four day series and includes 30 day access to recordings of all webinars and speaker presentation slides
• *Booking fees apply

Tuesday 25th May 2021  9.30 – 4.30
Wednesday 26th May 2021  9.30 – 4.30

How to view
We will send you an email containing joining details upon registration, a reminder one week before and one the day before. Our webinars are broadcast on Zoom.

In order to watch the webinar you will need the following:

  • A computer, tablet or smartphone with working speakers (a computer is preferable to better view the presentations, participate in live polls and chat with other attendees if you wish)
  • An internet connection with a good speed

The email we send to you has a link for you to join the webinar. Your joining link is unique to your email address (the email address entered when your booking was made, and where you received your booking confirmation and reminder emails). When you wish to join a webinar please ensure you are logged into Zoom using this email address rather than an alternative, otherwise you may experience a delay.

If you do not already have Zoom downloaded on your device, you will be prompted to download the free software and set up an account – this should only take two minutes to complete.

If possible, it is good to have Zoom installed prior to the event.

Please try and join the webinar a few minutes early in order to allow time for the Zoom download if necessary, (it may ask you to register again – just put in your name and the email you registered with) and to be ready for the start at 9.30am.

Alternatively you may wish to watch the webinars when it’s most convenient to you. If so, we will email you details on how to access video recordings of all webinars in the series the week following the event. You will have 30 days to watch them.

If you don’t receive a booking confirmation or joining email from us, or generally have difficulties logging into the webinars, please contact us at info@alzheimersshow.co.uk

Recordings and slides
Ticket holders will gain 30 days access to video recordings of all webinars in the series plus speaker presentation slides. We’ll send you a link and a password the week following this event.

Book the 2 days now for just £17.99* for public/carer/family member, and £32.99* for professionals.

If you have a group and wish to book tickets on invoice, get in touch: nward@alzheimersshow.co.uk

Professionals will receive confirmation of attendance and certificate (upon request) to put towards their personal CPD. Price includes 30 days access to recordings of all the webinars and speaker presentation slides. *Booking fee applies CPDCertifiedlogo_SM